THE PHOTOLUP STUDY

Thank you for your participation in the PHOTOLUP study, which aim is to assess the characteristics of PHOTOSENSITIVITY in lupus.

Photosensitivity, or abnormal sensitivity to light, is one of the most common symptoms of lupus along with fatigue and pain!

With the PHOTOLUP study, we would like to characterize the frequency and the types of photosensibility observed in lupus patients, as well as the strategies used to protect yourself from UV light.

The information collected in the questionnaire is anonymous and recorded in a computerized file by Renaud FELTEN and Laurent ARNAUD for the Rheumatology Department of Strasbourg & the National Reference Center for Rare Systemic Autoimmune Diseases (RESO). The legal basis of the treatment is the consent. They are kept for the duration of the study.

Participation in this survey is anonymous and takes approximately 10 minutes.